In this column, I will continue to highlight those individuals who are changing the world we live in for the better by challenging and changing the norm. These are individuals who are unsung heroes and heroines, who are making huge impacts whether in a small community, a profession, a national or international stage. These are the people who make small contributions at first that then snowball into legacy movements.
We are surrounded by unconscious bias which steers our decision making and assumptions every single day. This bias is often based on long held and subconsciously learnt rules which have since become fact. Girls wear pink and play with dolls; boys wear blue and play with toy soldiers. People with disabilities cannot achieve and must be looked after as they cannot be independent.
The world is changing, and individuals are slowly challenging, breaking and transcending these rules. Whether this is in the sports arena such as the Paralympics or feats of endeavour such as climbing Mount Everest, disabled people are showing the world, ‘Yes, We Can!’.
This week I interview Dr Hannah Barham-Brown, who is a Doctor and an advocate for equity both for women and those who are disabled. Her interests are wide and include medical ethics as well as medicine in the media. She regularly blogs about health and disability issues on her personal blog, ‘Wonky Medicine’; and tweets furiously @HannahPopsy.
Hannah was diagnosed as having a disability as a final year medical student and needed her wheelchair just before graduation and whilst challenging, this amazing woman has certainly risen to the challenge with humility and resilience.
I’m a GP Registrar in Leeds, and a wheelchair user. I work part time clinically and spend the rest of my time giving talks about disability and diversity as well as working with the British Medical Association. I am a member of BMA Council and Medical Ethics Committee. I am also part of the Junior Doctors’ Committee which has just agreed the new Junior Doctors’ Contract. I am a member of the Women’s Equality Party and stood as a local Council Candidate in Leeds, and as an EU Parliamentary Candidate in London. I regularly appear in the media talking about a wide range of topics, I’ve given 2 TEDx talks, and in 2018 I entered the ‘Powerlist’ for the Shaw Disability Trust which was humbling. I’m also an Ambassador for two charities; The Eve Appeal and MyAFK.
How are you a disabled person?
I was diagnosed with Ehlers Danlos Syndrome, (a collagen disorder affecting skin, joints, gut and other things) having run a half marathon and left myself with long term injuries following some kneecap dislocations. Since then, my joints have become gradually less stable, and I now use a powerchair or sticks to get around.
What was your initial reaction to your diagnosis?
I think initially it was one of relief that there was something wrong with me, and there was a name for it. Having an undiagnosed condition is a very lonely and isolating world, with little support available. The practicalities of how my life was going to work with a disability were my major concern, as I’ve grown up with a disabled mum and so know the huge barriers disabled people still face every day.
What concerns did this raise for you as a newly qualified doctor?
Simply getting around was a major concern, having to crowdfund a wheelchair in order to do so was not how I planned to spend that year of medical school! Also, the fact that I’d never met another disabled doctor before, so I had no one to turn to for advice or reassurance initially. It turns out there are quite a few of us, but I had no idea at the time!
How would you describe your ambition and purpose for your career?
I have to be quite realistic about the future of my clinical work; my condition means I experience regular joint dislocations and other injuries, so I probably won’t be able to work as a doctor forever but I’m determined to keep going as long as I can because I really love my job! My other passion centers around making the world a better place for disabled people. I know I’m in a privileged position where I have a platform and the ability to highlight iniquities as I experience them, so I hope to continue doing so (however ‘difficult’ that makes me!). I love politics, so fully plan on developing my career in that direction.
What problems need to be solved to ensure equity for those with disabilities?
Where to start?! We live in a world designed without disabled people in mind, and as such, even the simplest tasks for other people, such as getting across London or popping to the supermarket, can be huge challenges for us. But there’s a relatively simple solution – involve us at every level!
I’ve had so many difficult experiences in terms of the most basic tasks such as train travel; I’ve been left on trains, and at some points have had to travel using my sticks rather than my wheelchair because I’m just so worried about how I’m going to manage the journey on wheels when I can only access ¼ of the tube system. This leaves me in a lot of pain, and far more vulnerable to injury, but I refuse to stop living my life simply because the world isn’t ready for me yet!
What frustrates you the most?
People speaking to me differently because I’m disabled or patronising me because my body is different. I have ten years of university behind me, I’m a doctor, and I’m an effective campaigner. I’m not ‘lesser’ because of my disability, I’m different, and, my disability has led to a range of experiences and knowledge I’d never have had without it. My disability can be an asset, so don’t pity me.
What are the challenges in making the public aware of your work?
I used to feel I had to prove myself constantly, to challenge assumptions. Part of me always will feel this way a little, but now I focus on doing what I can to make the world a better place and give a voice to people who struggle to find adequate representation in other ways. I try to keep my messages varied, to use humour and embrace a variety of media to get my work out there; but it can be hard to keep up with everyone and everything – I really need a PA!
What keeps you going?
I’ve been brought up around a sense of vocation; my father is a priest, and my mother goes above and beyond in her role as a “Vicar’s Wife”, whilst also volunteering in several roles. I’ve never been motivated by money, but more so by an altruistic desire to improve and impact change in the world. I think having lost two younger brothers, I’m very aware that no one is here forever, and what really matters is what we achieve in our time here.
Why did you choose to be an Ambassador for your chosen charities?
Well, I had the privilege of being asked by both, quite unexpectedly, and as with most of my charitable escapades, couldn’t bear to say no! They really are the perfect fits for me; MyAFK works to get young people mobility equipment they need and to support those with intellectual disabilities into work, which are both areas I am passionate about. The Eve Appeal is all about fighting the five Gynaecological cancers, improving access to smears, and encouraging education. I’ve recently been campaigning to make GP practices more accessible to disabled people for examinations, and cervical smears are a key example of where improvement is needed, so it’s great to be working with such an enthusiastic and dynamic charity on this!
What can we do to help?
Look around you. Are the 13.9 million disabled people who live in the UK represented on your board, your executive committees? If not, ask why the 1 in 5 is not represented in the room. And change this.
What key message do you want to highlight?
Disabled people bring something unique. We are Nature’s problem solvers, because we live in a world designed without us in mind. Involving us in your discussions and workplace is not about doing us a favour, but about ensuring you aren’t missing out on an exciting and different way of thinking.
The world is changing rapidly, and society is struggling to adapt to the change. This column will highlight those who are recognising the challenges and developing solutions to accommodate this change.
I have been saddened by the level of knife crime that continues to plague our society. Anyone who has children will hope to see them thrive and achieve more than the parents, whether this is financially or socially. The tragedy of investing in your children and seeing their lives cut short at such a young age cannot be imagined. The senseless violence that has engulfed us is no longer in isolated violent communities but is now on our doorsteps. It is happening to children of friends and colleagues.
This week I interview Dr Mark Prince. His son Kiyan Prince died violently on the 18th May 2006 whilst trying to prevent harm to another child. The loving nature, by which he was known, was what made him step in and defend his friend who was being picked on by another youth. The incident took place outside the gates of his school, the London Academy, located in Edgware North London. Kiyan attempted to resolve the situation in the most peaceful way by directly challenging the aggressor.
The ‘killer’, 16-year-old Hannad Hasan, felt that Kiyan had disrespected him because he stood up to him. He then turned and callously killed Kiyan – plunging a knife straight into his chest. Kiyan died of a single, but fatal, stab wound to his heart.
Mark has set up the Kiyan Prince Foundation, with a vision to “work with young people to increase awareness and address the consequences of gun and knife crime through education. It aims to empower young people by promoting a sense of belonging, self-worth and purpose that can be found outside of gang culture and offending behaviour through providing access to diversionary and preventative activities”. He has been honoured with an OBE, for services to tackling knife and gang crime in London.
Please tell us about yourself
So, this could take all day to answer! Be a great start if everyone could buy The Prince of Peace on Amazon that would help, but for interview purposes I would say that from a young age I have always had a love for reading books, learning and dreaming big. I also love sports activities and I mean any sport activity. I had my favourites like football, cricket and basketball but I just love being active and developing skills. I had a Dad who was extremely harsh to say the least. The recurrent dishing out of punishment led to emotional and physical damage on my part which took a long time to recognise. I ran away from home at 15 initially getting into drugs, alcohol and criminal behaviour. Being a determined young man with dreams and aspirations I decided at 21 to break the cycle and change. I decided that I wanted to be a champion and become a professional boxer. This determination and hard work led to me becoming no1 in the world ranking and fighting for a world title.
This journey changed me as a person, and I developed the character needed to set and attain goals which made me proud. This in turn made my friends and family proud of me which was not present in my former lifestyle.
Life continued to throw testing experiences. I buried my stillborn baby, my high profile career abruptly ended after a freak accident that left my knee out of its socket tearing all the surrounding ligaments. My mum was given a 30% chance of surviving an operation to the brain to release a blood clot but the most severe one was having to identify my son after the doctor announced his death by stab wound to the heart! This left me an utterly broken man. I was tested on every level as a human being rethinking what I stood for and what I had taught my son, those values embedded on his journey to be a man.
I found out a lot about myself during this experience. I would say I am determined, I am truth, I am forgiveness, I am love, I am a leader, I am growing, I am life, I love life, I love people, and I love the manufacturer of human beings, my creator God.
To describe Kiyan is very simple, he was very funny, laid back, caring and peaceful son. He was a leader that left an impression amongst his peers and grownups alike, even when Kiyan was being cheeky or naughty you liked him!
Kiyan, played for Queens Park Rangers Under-16’s football team. He was dubbed ‘The Bullet’ because of his speed and he was hailed as the next Wayne Rooney… tipped to play for England. After his death QPR confirmed that he was going to be offered a professional contract.
Kiyan was a beautiful, thoughtful, kind and considerate young man. How he lived was reflected in the way he died. Even though he must have been very scared and in pain, in dying he still represented the life he lived. His heart was so full of love and empathy for others. In his final minutes his thoughts were, even then, still of others. As he lay bleeding, he told his friends: “if these are my last words… tell my Mum I love her’.
The tragedy that sparked the foundation is a very sad story, to leave school and walk up to an altercation peacefully trying to break it up is not where you expect to die. To start the Foundation because of your son’s death and impact on so many young people’s lives is not where you expect to find your purpose!
What problems are you trying to solve with regard to knife crime?
The main problem we are solving is changing the negative narrative that this is a problem with only an isolated demographic of youth. This is a problem with leadership, from government leadership to parental leadership. Even social platforms of leadership i.e. online music are sending out negative messages. We need to change the narrative and sending out positive message to empower young people and this needs to be solved by changing people’s mindset and this can only be done through education and inspiration.
Who are the people who could benefit?
People with low self-esteem, behavioural issues, negative mindsets and anger problems. Partly this is a phase of life, but this needs a senior steer. These children have an untapped talent potential. These children fall into several groups, primary age 7-11, secondary age 12-16 and young adults age 16-24 groups. The other group are the young offenders. What we often hear from our volunteers is that anyone who works with these young people often find that they benefit from the interactions with these children too.
What are the challenges to make the public aware of your work?
Funding is always a challenge because we need to be sustainable to continue reaching these children. We lack premises and this is a huge issue because there are so many young people we want to reach out to. We know we can continue to support them with our programs, but we have nowhere to deliver these especially as community youth centres and programmes have been discontinued.
What keeps you going?
It is difficult. I get a special boost when I receive the many messages from young people expressing how they have changed the way they think regarding carrying knives and their peers carrying knives. I feel like I can let Kiyan know that children are telling me that I have become their new role (real) model and have saved their lives and they have never been so inspired before. This and evidence that the work being done continues to make a difference keeps me going.
What can we do to help?
You can highlight positive stories where we have demonstrated we have evoked change. Please encourage people to make donations so we can continue our work. Everyone needs to help change the negative narrative that media normally cover on this issue, this is not just an issue of poor black criminal boys. Share the Kiyan Prince Foundation’s work and encourage Corporates to adopt us as a Corporate responsibility. If anyone can signpost to premises that we can use, we would be grateful.
What key message do you want to highlight?
That we are all here for a purpose and as individuals we have great value to add to this planet with our talent, gift and positive thinking. Our roles should be inspiring young people and supporting the children who are disenfranchised and disadvantaged. This is a society and community role.
We must educate and demonstrate leadership qualities. By doing this we can educate and role model to our children, so they recognise when they are being led astray.
This holiday weekend makes us reflect on religion, family and the world at large.
Yesterday, we watched an amazing programme by David Attenborough, which was a ‘call to arms’ to the world to slow down climate change. The risk of global warming within the next 30 years seems inevitable unless we change our own carbon footprints as well as those of major industries. A small rise in temperature may completely change coastal communities as well as drowning historical sites and London itself will be under threat as water levels rise.
We have seen the odd swings in local temperatures with huge surges in rainfall which overwhelm local drains. Wallington in Surrey, saw flash floods that caused chaos within a few hours.
London is under a greater threat and this is becoming increasingly visible.
There are a row of large lions’ heads, cast in bronze, that line the side of Victoria Embankment. They were sculpted by Timothy Butler for Sir Joseph Bazalgette’s Victorian sewage works programme in 1868-70. These are important as they allow a visual guide to the risk of flooding in London. The old rhyme states: “When the lions drink, London will sink. When it’s up to their manes, we’ll go down the drains.” The mouth of each lion holds a mooring ring and the rhyme suggests that if the lions drink the water from the Thames, London will flood. Although the lions have never been submerged to date, certainly high tides now seem to lap the heads regularly.
The world is changing around us. We are all living longer and expecting more from life. I want my children to enjoy their lives and look forward to their children achieving and living happily and successfully. Stratton and Scott suggest that an individual aged 20 now has a 90% chance of living to 103 in the Western World. Someone who is 7, is likely to live to 107!
Authority is being turned on its head. It is humbling that 16-year-old climate activist Greta Thunberg is leading the charge to ‘wake up the adults’ to what is threatening their future. “We had everything we could ever wish for… now we probably don’t even have a future anymore.” She also says the planet’s future “was sold so that a small number of people could make unimaginable amounts of money”.
So what do we need to do to?
Small changes will make a difference. It is easy to order on Amazon and get a delivery today. It is convenient but does it really matter. Why can’t it wait until tomorrow? Or next month? I think back to the time when we were little. Asian food was not sold in North Wales and we would wait til the monthly trip to Manchester to buy the groceries from the Indian shops there. Now all the food from the world is available in my local superstore. Previously we would enjoy the fruits of the season and now we enjoy them all year round. But do we? How many times does fruit over ripen in the fruit basket and then get thrown out.
We all need to consider what we want from life. We have become impatient. We will watch an entire box set or chomp through a box of chocolates because there are no more boundaries on life. Rules that existed previously have been over written.
Perhaps now is time to rewrite the rules. There will have to be an exchange of values as we no longer live in an altruistic world. If we suggested that you stop buying online, it would never happen. What would be valuable is to attribute a carbon footprint cost to everything we buy.
You may have a choice to buy strawberries. Choice should no longer just be based on cost. One carton maybe slightly more expensive but is produced locally whilst the other has been flown across the world. An understanding of the carbon footprint might alter your choice and start to change the way that we live and eat.
Are we able to repair items and make them last longer rather than throw them out and buy new? Do we really need that new phone just because it is the new release? Should Amazon offer a discount if you agree to a bulk delivery once per month rather than the delivery of an item under £5?
We all have to #ChangeTheNorm for many reasons.
I reflect back on the last few years with regard to my health.
I developed a loss of balance and tiredness nearly three years ago and struggled to understand why. I still remember the fear of the diagnosis of an acoustic neuroma and the desperation to stop being a patient and live my normal life. I remember the amazing team that looked after me in the John Radcliffe in Oxford. Mr Richard Kerr was my NeuroSurgeon and operated on me for 12 hours. The night in ITU is unforgettable and I have never felt so vulnerable and weak as in those first five days. Headaches, nausea, dizziness and sheer frustration began and have never completely resolved but are so much better than at the start.
In truth, I went back to work too early (yes, everyone was right!) and it took me eight months post-surgery to be anywhere near normal but the NHS was a great employer and my friends, family and colleagues at work supported my journey.
I have recently undergone another post-operative MRI. This proves that there is no increase in size of the small remnant of the acoustic neuroma. Hurrah!!! No more scans for another 6 months.
Everyone was pleasantly surprised at the pace of my recovery and outwardly there is now little evidence of the surgery. Even the hair that was shaved has completely obscured my scar and I am now more comfortable putting my hair in a bun!
The improvements that I noticed post operatively that allowed me to return to normal have now all slowed down. I have gone from hearing perfectly to unilateral deafness. Voices become less distinct when there is a lot of background noise. My brain does not switch off and my sleep is frequently interrupted. I now must make notes to ensure that I do not forget anything as my short-term memory works very differently. My balance has improved but is noticeably different when I am tired. I no longer feel that I am invincible and am more aware of my health and the need for a work life balance.
I love being back at work and being lucky enough to have had such little post-surgical complications. This carries with it a guilt for all those who had a much tougher post-operative journey. I still manage my long lists and the education and training of junior surgical colleagues. Both as a Surgeon and as a Clinical Director, the patient experience is invaluable. It infuses everything I do and on most days.
But the most important lessons are being learnt now. I will never go back to my ‘normal’ but I have had to develop a new norm. Those that know me are slowly forgetting my recent journey and I must remind them that I am deaf in one ear as they whisper to me or talk quietly in a meeting. I get tired and must pace myself and so have had to say no!
I am also learning that the world is not forgiving of disabilities. In a shop recently, a woman faced me angrily and told me she had been asking me to move out of her way, in a busy shop full of Christmas shoppers. She pushed past and walked away before I could tell her that she had been talking to my deaf side! I cannot pinpoint noise and feel like I need to wear a sign that explains that I am deaf on one side.
I have learnt to be grateful for the one life that we have, in which we must live, love and share happy times with family and friends. I have a new life, different to the one I had two years ago but one that I intend to live to the full. I want this for my children and their children too.
So Happy Easter to you. In the next few days, let us all consider what we can do to #ChangeTheNorm and make this planet, our wonderful planet, continue to be a place where we can live long and prosper.
I was delighted to be interviewed by Sovereign Magazine about my patient journey but also the wider NHS.
Stella Vig is a Consultant Vascular and General Surgeon at Croydon University Hospital, South London. Born in Bangor, North Wales, she trained at the University of Wales College of Medicine. She was appointed as a consultant in 2006.
Stella has a strong interest in training and encouraging medical students and foundation years to pursue a career in surgery. She is a champion and advocate for trainees, ensuring their voices are heard. Stella was awarded the NHS Leadership Academy London Mentor of the Year in 2015 and the Silver Scalpel Award as well as the Dr Rose Polge Award in 2018.
She developed an Acoustic Neuroma and underwent surgery in 2017.
We reached out to learn more about Stella’s story, the story of an extraordinary woman who had no choice but take the journey from being a surgeon to become a patient and survivor.
You brand yourself as an NHS Enthusiast and Survivor. What was your recent experience as a patient?
Luckily, I had an Acoustic Neuroma, which is a benign brain tumour. I can remember realising that I had a mass as I came out of the CT scanner. There was an immense relief when I found out that it was not a cancerous growth and that there was an option for surgery.
The NHS was amazing throughout my journey. I underwent a CT scan rapidly and was given a diagnosis by a Consultant before I could blink! In fact, it was too quick, and I had to spend time catching up with my diagnosis and coming to terms with it.
I had fantastic care both at Croydon University Hospital and then at John Radcliffe Hospital in Oxford. My surgery took over 12 hours but was uneventful. My Surgeon explained that it would take 6 months to recover and though I was desperate to beat these odds, it did take me 8 months to be anywhere near normal.
The NHS is in dire crisis right now and as a healthcare professional you have experienced both sides of the NHS. Stripped of who you are as a mother, friend, wife, and NHS Professional, what has the doctor, Stella Vig, learned from being a patient?
It took a matter of minutes to convert me from a Consultant Vascular and General Surgeon to a patient. As a professional, I am aware of the funding crisis and the increased need for NHS care which is outstripping current capacity. Whilst I knew what was going on in the background, as a patient I was shielded from this everyday chaos. I was given time to talk in my appointments, my operation took place on the day it was planned, and I had all post-operative care as needed. I never felt rushed or that I was wasting valuable clinical time. The nurses, though overstretched, made me feel as if I was the most important patient every day and the physiotherapists forced me to walk, even though I did not think I could do it!
How this experience impacted your values as a surgeon?
This experience has reaffirmed my values as a Surgeon that the patient always comes first and you must do the right thing, first time to the best of your ability. The Surgeon was fantastic and although there was a 40% chance of facial nerve injury, I managed to escape this devastating complication, due to his skill. The honest discussion during my consultations, which were frank and informative, helped develop a strong bond of trust and faith in my Surgeon and their team.
The experience has also reinforced how vulnerable a patient feels under one’s care as well as the wider impact to the family and friends. The surgeon’s role is not just to ensure that the patient is looked after but also that the family are kept up to date with post-operative care and discharge plans.
What was apparent was that the Surgeon’s leadership was evident in the behaviour of the ward and more junior team. Being a Consultant Surgeon is not just about the surgical skill. The compassion and communication as well as leadership and development of the surrounding team, ensures excellence in patient care.
There is a lot of frustration both with communication and compassion, not only with patients but with NHS staff. What can the NHS do to survive?
The NHS is a valuable institution and the recent survey by the Kings Fund, evidences that the public still consider this to be vital to the United Kingdom. As a member of the public, we need to ensure that the NHS is used wisely. It is sad to see patients not attending outpatient appointments, tests and operations. Each of these wasted appointments costs money but also stops another patient from using this time for their own care.
As a Clinician, we need to be aware of the cost of tests we order and practice evidence-based medicine. There is a constant need to innovate and to challenge ourselves to deliver the best care in the most efficient way possible.
The NHS has its own hierarchy, economy, and while looking at systemic flaws, we have a moral duty to acknowledge the rapid growing demands for healthcare. What are politicians missing to understand and address, what they need to know from your viewpoint as a NHS Enthusiast and Survivor? #
Politicians are aware of the crisis that is developing within the NHS, mental health and social care. The current promise of £20 billion is needed immediately to avert capacity issues but this must be spent across all the sector. The ageing population has not yet soared as the post war baby boomers are still young at 70 and intend to live well into their old age. There is now an increasing need not just for health care but social care as the family networks have disintegrated increasing the need for government aid.
The need for investment is not just cash based. The NHS has long survived on the goodwill of altruistic staff, but the removal of NHS bursaries and the Junior doctor contract discussions have developed a major chasm in the NHS culture. Investment is now needed in developing the NHS workforce of the future.
You are known for your contribution as an educator. How important is education in the work place?
Being an educator, mentor and trainer, brings huge rewards. The small daily investments in your future colleagues across the multidisciplinary field soon causes major ripples. Once one has invested in you, you feel duty bound to invest in another. This circle of kindness, care and interest in the work place creates an atmosphere that engenders innovation and a wish to try without recrimination. This is the culture that needs to permeate through the NHS but sadly is still only palpable in small pockets.
You received The Dr Rose Polge Award. While a doctor never chooses to be ill, is anyone prepared to give them a chance whilst they are struggling with their own mental health challenges?
Receiving the Dr Rose Polge award was humbling. Dr Polge’s death was tragic both for her family as well as the NHS. We need to look after each other and this just takes an investment of one’s time and a passion to nurture. If just one trainee reaches out, then this is worth it.
There are very few ‘Difficult Trainees’ and if one probes sensitively, there is always a back story to the trainee in difficulty. It is important that the culture supports the notion that no one comes to work to cause harm or intends to become ill. Doctors are human and have the same life challenges as everyone else. Bereavements and family circumstances may cause an individual to become the sole bread winner whilst managing a taxing career. Illness may creep up slowly without an individual realising the effect on their work. Support and understanding at this difficult time allow a doctor to return to their profession in some way that allows them to succeed. The NHS is supportive of health and well-being, but services remain stretched as the NHS becomes more and more challenged fiscally.
There is still a long way to go to eliminate not only the stigma of current mental illness among the medical profession but raising awareness for their well-being. It is a global epidemic and there are no easy answers. What does it take to change NHS attitudes towards doctors’ well-being?
One of the major challenges in supporting doctors is the pride and stigma of health and mental illness. There is a fear that once one is labelled, one cannot return to a normal working life. It is imperative that the work place champions the idea of asking whether one’s colleagues are okay and creating a safe place for individuals to talk if they need to. All hospitals have an occupational health department and they are fantastic at signposting to services that are available. From a personal point of view, the support I have had from colleagues has empowered my return to work with an increased loyalty to the NHS that looked after me.
Communication is the very fabric of the healthcare profession. For centuries people went to the doctor and told their story and the doctor prescribed a remedy based on what they heard. While this is a very basic definition of the patient- doctor relationship, do you think communication is utilised to our advantage at present? How can we use the power of words to communicate better as a patient and as a healthcare professional?
The basic tenant of communication remains the story telling by the patient to the doctor. The details of the story are vital to the diagnostic abilities of the doctor but the skill of asking the right questions is still key. Underlying this is the need to develop trust to enable the story to be told without any concerns that the information will be used unwisely. As a patient, this was the key in ensuring that my treatment was a positive journey.
Consultations often carry explanations of difficult concepts and details of complex management plans. These conversations are embedded in the delivery of bad or difficult news which engenders fear, desperation and the defence mechanism of denial. It is therefore difficult to ensure what is said is what is heard, whether by the patient or the professional. Listening and checking what has been heard and understood is essential to reach a common understanding. Key to this communication is the multidisciplinary team who encompass a wide variety of skills. The specialist nurses are a fantastic resource that are not only extremely professional and knowledgeable but also approachable providing care plans in a practical and long-lasting relationship.
Merry Christmas to all of you! I hope that you have found time to eat, drink and enjoy the company of loved ones and develop new memories to cherish forever! I am on call and treading the delicate balance of ensuring that any patient well enough can get home if they wish, especially if it is likely to be their last Christmas.
It is always a difficult time of year. We try to get patients home but sometimes home is not the cheery warm house with the open fire, a Christmas tree and presents all around. Sometimes it is a bleak place that is lonely and cold and patients choose to present to accident and emergency to be admitted and enjoy company and good food in hospital. Others would love to go home but are hampered by the need for social care which is a scarce resource. They may need mobility aids or food delivered to home or sometimes, just someone to pop in and check they are okay.
As cuts have hit, many convalescent homes have closed, which used to offer respite for patients, allowing an interim between an acute episode of care and home. The wider social network has also diminished as the societal norm of the extended family has changed with smaller family units and a desire to move to independent family homes. It seems simple that a family member could come and stay or that the patient could stay with a close relative but the interconnectivity between NHS Trusts, community and social care are so poor that it takes an age just to set up dressing changes in a different postcode location. There are therefore, patients who are desperate to go home who end up in hospital over the Christmas period despite best intentions.
The desire to get home does seem to add a miracle into the medical mix as patients summon inhumane energies to get better. I wish I could bottle this up as an everyday get well potion! There is great evidence to show that a positive attitude reduces the length of stay of patients in hospital. This seems to drive the same positive gains as the #EndPJParalysis campaign. This global social movement emphasises that having patients in their day clothes while in hospital, rather than in pyjamas (PJs) or gowns, enhances dignity, autonomy and get them home quicker!
The lead up to Christmas has been a busy one. We have celebrated the 60th wedding anniversary of my in laws with a surprise party as well as attending the wedding of a dear friend. The 60th celebration cake was unbelievable!
It has been busy at work and we have tried to say thank you to the people we work with everyday. We wrapped up 250 Christmas socks, with chocolate coins and Christmas pens! This was a small gift to say thank you but we enjoyed spreading good cheer in the Directorate!
As we all start to celebrate, we have to ask what is Christmas? A holiday, a religious time or just a state of mind, where we all enjoy goodwill and mercy to each other? This year more than ever, has demonstrated the undercurrent present in our society, which engenders distrust, chaos and division. As we drive through the streets festooned with lights and holiday spirit in the air, society seems to be conjoined in ensuring a good time for all. And then there are glimpses into the alternative reality with the homeless on the streets and BREXIT looming.
I write today on Boxing Day. My father passed away three years ago on this day. He died peacefully at 92 having led a hard but successful life. I am glad he is not here to see the divide that is developing in this country. He arrived in 1955 on the RMS Strathnaver and then married my Mum. Together they brought up three children and encouraged us to work and play hard! The ethos of working to improve the lives of others is embedded into all of us and we have worked hard to honour Mummy and Daddy. Daddy himself played a important role in North Wales, where as the first Asian Labour Councillor, he advocated for an investment into the fabric of Penmaenen. He has left a legacy not only in us but in Penmaenmawr. It is now hard to imagine an alternative scenario where Daddy had been refused UK entry and the three careers which add to society as well as the hopes and dreams of our children rendered null and void.
This Christmas has been quiet, with only four of us celebrating, especially with my week on call. Christmas in North Wales was full of laughter and presents and was the one time when we were all at home! To the kids dismay, I am looking forward to the time when they have families and we have young children running around again!
I hope that you all have had time to spend with family and friends and wish you good cheer!
This is a series of blogs starting from the day I was diagnosed with an acoustic neuroma. If you want to start at the beginning then please follow this link: